Data Use Register
The Data Use Register summaries projects on the platform.
Active Projects
MVP Pilot - Heart Failure use case
MVP Pilot - Heart Failure use case
ID: SDE_EE_PROJ_A0001
Data Access Agreement (DAA): Counter signed date: Thursday 18 April 2024 Time period: 14 months
Contract Organisation: Name: Cambridge University Hospitals NHS Foundation Trust Legal Name: Cambridge University Hospitals NHS Foundation Trust
Number of Patients: 24,000
Data sources: CUH, EEAST, MKUH, NNUH, NWAFT
Funding sources: NHS England
Project Start Date: Wednesday 02 October 2024 Planned Project End Date: Tuesday 30 September 2025
PPIE Details: Involvement of patient groups, Public consultation
Summary
This is project aims to improve health outcomes by reducing 30-day readmissions/deaths for patients with a heart failure primary diagnosis
Project team
| Name | Position | Organisation |
|---|---|---|
| Dr Paul Cacciottolo | Consultant Cardiologist - Primary Investigator | Cambridge University Hospitals NHS Foundation Trust |
| Prof Angela Wood | Professor of Health Data Science | University of Cambridge |
| Wen Shi | Research Associate | University of Cambridge |
Dataset Criteria
Criteria include: data from the last 10 years; data fields describing demographic attributes, medications during admission/hospital stay, medical history of conditions, physical measurements like weight and height, procedures, death dates and more.
Real-World Data Curation of Cancer in the UK
Real-World Data Curation of Cancer in the UK
ID: SDE_EE_PROJ_A0016
Data Access Agreement (DAA): Counter signed date: Thursday 06 October 2022 Time period: 60 months
Contract Organisation: Name: Cambridge University Hospitals NHS Foundation Trust Legal Name: Cambridge University Hospitals NHS Foundation Trust
Number of Patients: 13,000
Data sources: Cambridge University Hospitals
Funding sources: Arcturis Grant to CUH
Project Start Date: Friday 16 May 2025 Planned Project End Date: Thursday 10 June 2027
PPIE Details: The Arcturis Patient and Public Advisory Panel are involved in all aspects of the Arcturis Real-World Data Network’s research operations, including considering and providing feedback on datasets such as this and the research conducted using it.
Summary
The aim of this project is to construct a dataset of real-world oncology data that will be used to fill key evidence gaps regarding treatments and outcomes for patients living with a range of cancers in the UK. The dataset will be used to generate a range of real-world evidence-based insights in the following areas: Real-world use and sequencing of anti-cancer treatments; Identification of populations in which there is an unmet therapeutic need; Comprehensive characterisation of the use of support therapy in the treatment of cancer, and assessment of real-world clinical outcomes; Identification of key groups of patients who are under-represented in phase 3 clinical trials. This oncology dataset is part of the Arcturis Real-World Data Network, a research database for conducting observational research. Research projects which have used or are using data comprising the Arcturis Real-World Data Network are listed on their Public Register of Research.
Related links:
Project team
| Name | Position | Organisation |
|---|---|---|
| Benjamin Granville | Partnerships Relations Manager | Arcturis Data Limited |
| Lewis Carpenter | Director Real World Evidence | Arcturis Data Limited |
| Jamie Wallis | Principal Medical Statistician | Arcturis Data Limited |
| Federica Picariello | Senior Epidemiologist | Arcturis Data Limited |
| Filipa Tunaru | Epidemiologist | Arcturis Data Limited |
| Danielle Robinson | Senior Epidemiologist | Arcturis Data Limited |
| Bernard Cooke | Senior Data Engineer | Arcturis Data Limited |
| Olivia Wiper | Clinical Data Scientist | Arcturis Data Limited |
Dataset Criteria
The anonymised, baseline and longitudinal demographic and clinical characteristics of patients living with cancer.
Impact Summary
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